Advice from a Parkinson’s advocate and his care partner with Vivek and Chai Puri
Are you aware there’s an excellent podcast that deals specifically with Care Partner support for women who have a partner with Parkinson’s?
It’s called Married2PD (https://www.married2pd.com/)
Check out the above link to learn more
Vivek and Chai talk about raising children, communication, agonists, social media and much more
About Vivek and Chai
Married for 15 years.
Living in Northern Virginia with three kids Chai grew up near Boston and is a trained doctor and a licensed massage therapist. She works in Vivek's home building business. She also started and runs Married2PD, an organization focused on providing a place of support for wives of people with YOPD. There is a website, Facebook group, podcast, and a monthly gathering via zoom. She really enjoys gardening and reshuffling furniture and furnishings inside the home over and over again.
Vivek grew up in Northern Virginia. For the last 16 years he has worked with his father in the family homebuilding business, which sounds like a euphemism for a mafia money laundering operation. Now that his wife also works in the company, he shudders at the thought of giving her a performance evaluation. He was diagnosed with Parkinson's disease 10 years ago, the day after his third child was born.
New show’s sponsored by the Young Onset Parkinson's Network every Thursday evening at 6:00 EST on radioparkies.com
Interview of Jennifer Sullivan founder of you tube channel ”The Wiggles Project” https://www.thewigglesproject.com/
SEASON 1 EPISODE 10: 5 Facebook friends travel to Oaxaca Mexico to help out their Parkinson’s community
SEASON 1 : EPISODE 9 - JOE GREGORY Diagnosed with Parkinson’s 3 years ago, kicks (Keepy uppys) a soccer ball for 61 miles
keep·y-up·py
noun INFORMAL•BRITISH
a game whose aim is to keep a soccer ball in the air for as long as possible by bouncing it off any part of the body except the hands and arm.
Thursday (5/12/22) evening on radioparkies.com at 6:00 EST the Young Onset Parkinson's Network (https://yopnetwork.org/) is proud to present the incredible Joe Gregory!
Gavin Mogan and I speak with Joe who was diagnosed with Parkinson's in 2019 did "Keepy Uppy's" for 61 miles in addition to completing over 13,000 consecutive right in his back yard.
Joe was a great interview who will keep you inspired, don’t miss this one!
Check out this video to see a keepy uppy!
https://www.youtube.com/watch?v=Q7TzBKLL_XY
SEASON 1: EPISODE 9B: Ninja warrior Bryan Hill talks about having Parkinson’s and appearing on the American Ninja Warrior show
Thursday night at 6 EST on radioparkies.com we spoke with new ninja warrior Bryan Hill, Bryan tells his incredible story beginning with his mother being diagnosed with PD at 23 to becoming a Ninja warrior.
SEASON 1: EPISODE 9A: TikTok-er Chris Sutphin talks about mental health and Parkinson’s
Thursday night 5/5/22 at 6:00 on radioparkies.com we spoke Christopher Sutphin otherwise known as cosmosperfect on TikTok. Chris talks about mental Health and Parkinson’s and https://www.parkie.tv/
SEASON 1: EPISODE 8C: Carol Walton talks about this year UNITY walk in NYC
We have Carol Walton and Stacey Walstrum of the Parkinson's Alliance. Yes there is a walk in NYC this year and a virtual component as well!
SEASON 1: EPISODE 8B Jessica Ackerman talks about speech classes and yoga for Parkinson’s https://www.jessicaackerman.com/
Jessica runs Zoom classes for voice and yoga, she' worked with the PD community for over 20 years.
She runs zoom classes for a "Speak Steady" program
Speak Steady Program for people with Parkinson's and other neurologic impairments.
This targeted program is delivered by Licensed Speech-Language Pathologist, Jessica Ackerman MSCCC-SLP, also a Registered Yoga Teacher with a career of experience in Voice and Speech Therapy for neurologic impairments, including LSVT LOUD. Jessica's breath-based yoga program aims to maximize vocal loudness, breath support for speech, and intelligibility of speech that so often impact communication effectiveness of people with Parkinson's Disease.
This weekly program focuses on synchronizing basic gentle yoga poses with breath (matching a movement to an inhale and a movement to an exhale). Movements and poses can be achieved in a chair, wheelchair, recliner, standing, or yoga mat.
If/when you have voice issues, this program is highly recommended
SEASON 1: EPISODE 8A: Matt Vilardebo runs for State rep in South Carolina
Matt Vilardebo has been one of our most popular guests and now he's running for State Representative. Matt as you know has Parkinson's and he wants to leave this world in a better place. Listen in as Matt explains why he's running.
Check out his Facebook page https://www.facebook.com/mvilardebo
Donate to his campaign paypal.me/mattvforfm